Part XI: It’s the Little Things

 

We are getting snug in our bed in the trailer the night before his first dose of chemo and Greg tells me, “I want to show courage and be a role model for my sons as I go through this cancer treatment.” He is being so brave, and while he has not been reticent to share his feelings thus far, this sentiment still astonishes me. It takes me a minute to recover, and as I hold him close tears run down my cheeks.

Lying together, cuddling in the soft, warm sheets and heavy blankets Janine has thoughtfully used to make our bed, I have faith that we will come through this rough patch in our lives better than ever. Already we are seeing things in a new way. Cancer has opened our eyes to so many things we used to take for granted. The little things seem important now; such joy comes from those warm, soft sheets, the stars in the sky, the smell of coffee beans being ground. Thankfulness in the midst of cancer somehow comes easily for both of us. Maybe it’s the outpouring of love and support from our friends that fills all the empty places in our hearts with hope. There are so many blessings.

December 7, 2016. First chemotherapy treatment following third radiation.

Each of us have committed to certain tasks to ready ourselves, and we work in silence to get them done before morning fully breaks. I pack some snacks, our books, the trusty medical notebooks and we load up on warm clothes. We learned from our initiation how patients get very cold during chemo. The drugs have been refrigerated and when they go into the bloodstream he will most likely need a blanket. They keep the blankets in a warmer, so he’ll be nice and toasty, but I bring along his sweatshirt too. We both have on thick socks to ward off the chill. Sometime during his treatment I will take Isabela out for a walk in the hospital neighborhood, so I pack her leash and my gloves, scarf, and hat. The drawing that Lilly made is coming with us too. Deep breath. Ready.

Driving out of Mike and Janine’s driveway, Isabela thinks we are going to take her somewhere for a run, and that’s not what’s happening. Because we are going to the hospital five days a week for seven weeks, I start telling her on day one, “We’re going to take Daddy to the hospital,” thinking that she will get the drift after a few days and stop whining when we drive off everyday. It works after a few days, but not today. Her whining is annoying. Guess we’re both nervous. She settles down as soon as we get into the parking lot to wait for the ferry.

After radiation today we go to the 3rd floor–the chemo floor. The nurses are friendly, yet professional. They make us comfortable with their smiles, assurances and skill. The first treatment will happen in a private room instead of out in the open pod areas, for privacy they explain. Okay, let’s get this going. Greg looks pretty calm, but I imagine his outward demeanor is hiding his anxiety. He usually verbalizes his internal conflicts, thoughts, ideas. Today he is stoic. Neither of us slept very well, which has heightened our feelings of uncertainty. Greg rubs his lips, I keep pushing my glasses up, even when they aren’t sliding down my nose. The unease in my body makes my mind race, and I keep going over and over a check list of today’s possibilities. It isn’t my habit to play What if? That’s always Greg’s job.

Soon he is seated in the recliner and they have taken his vitals and accessed his chest port. Pre-meds have started. These are the medicines that will help his body tolerate the chemo drug, Cisplatin. They are anti-nausea meds, so we cross our fingers they will work.

Sweatshirt courtesy of dear friends from Colorado.

 

Greg holds Lilly’s drawing to remind us of home, and it provides him with Baja strength.

After an hour, I go back to the car for Isabela. It takes me a minute to don my heavy jacket, gloves, scarf, and hat. She is so excited and happy to finally be getting out, she is pulling on the leash. This is not what she’s supposed to do. Looks like I have some repeat lessons to give. It is difficult and painful for me because my shoulder is in such bad shape. I was supposed to get a complete shoulder replacement next month (January) at the University of Washington; I’ve been waiting for five months already, but both of Greg’s oncologists think I should postpone my surgery, so I have done that. The pain is getting so bad, but I am working on putting it out of my mind. When my dog pulls hard on the leash it’s not easy to “forget” my pain. My issue seems trivial though, and feeling sorry for myself will only give rise to guilt. Wishing to avoid anything negative, I promise myself to stay focused on how I can make things easier for Greg. It’s not always that easy, I’m human after all.

While Isabela and I make a tour of the neighborhood, I am lost in thought. It’s hard not to worry about things. Is our house in Baja okay? No break-ins? How is Greg doing alone up there in that room? How are we ever going to repay our friends for their help? Is the treatment going to work? What if it doesn’t?

Before I know it we are back at the car. Isabela jumps in and I pour her some water, but she isn’t interested. Apparently it’s not easy to work up a thirst in this cold weather and merely being walked on a leash. I leave the bowl full and return to my guy.

He’s got his eyes closed. Good. He’s relaxing. One chemo almost done; six more to go. Soon we will ride the ferry back to Whidbey Island with a contented feeling of accomplishment. One day at a time. One foot in front of the other.

The ferry on a nice day with Mt. Baker in the background.

 

 

 

Part X: Treatment Begins

Thanksgiving comes and goes. Ordinarily it is my favorite celebration. Somehow we don’t feel very festive this year. Our friends Mike and Janine already have family plans off-island, so we are on our own in their beautiful home. Though we have been invited to spend it with some other island friends, we feel the need to be on our own instead.

The quiet time is good for us. I roast an organic chicken with carrots and make mashed potatoes. Even though I don’t eat meat, only fish, I always acquiesce and have turkey on Thanksgiving. This chicken is a fine substitute, as a turkey is too big.

We give thanks for all our blessings and enjoy the meal together.

 

Knowing that Greg’s first radiation and chemo are right around the corner, we are nervous. Fear is part of it too, and not knowing exactly what it will feel like makes Greg apprehensive. Is it going to hurt? Will he have claustrophobia in the mask that he has to wear in the radiation machine? Will the chemo affect him right from the start?

It feels like a gas pedal is stuck and we’re speeding down the highway without brakes. It’s all happening without our control. Not good for a couple of control freaks.

The form-fitted mask is finished, his PET scan has been done, and his chest port and his G-tube are in place. The PET showed “activity” on his thyroid gland, mandating a biopsy. Another little procedure, but it turned out normal/benign. Whew.

This is the mask he wears during radiation.

I love my husband and am a nurturer at heart; I’m not afraid to be a care-giver. I enjoy learning how to use the gastronomy tube (G-Tube): how to clean the tube itself, keep his tummy area clean, tape the dangling part onto his hairy stomach, administer the so-called food (Boost…yuck) via syringe, and how, as an alternative, feed him that yucky stuff using a pump and hanging the bag of Boost on a pole so that it can trickle in. It’s not that difficult, but it’s important to  regulate the pump, and to avoid germs while working through the process.

The Kangaroo Pump

 

We won’t need to go through this G-Tube feeding rigamarole until he has trouble maintaining nutrition orally, so for now all we do is keep it clean by putting a couple syringes full of water through it daily. It’s not easy for Greg to accept this foreign contraption as a way of life. “It’s gross,” he tells me. Of course he’s right. It’s gross.

The first day of treatment arrives: December 5, 2016.

We rise and shine early to give ourselves plenty of time. Being punctual is of major importance to us all the time, but it is even more important today. Coffee is first on our list. The adrenaline I hate so much is already coursing through my veins. Adding a little caffeine will make it worse, but coffee is our lifeline right now. Neither of us can eat.

As we’re ready to leave we run through our check list: ferry passes, cancer information binder, protein bars, Isabela (our dog), dog leash, water for us and Isabela, coffee, books, yarn and crochet hooks (I’ve got to keep busy), jackets, mittens, hats, and our notebook. We also make sure to bring a special drawing done by a young girl, Lilly, who is the daughter of our friends, Sean and Dori. It’s a lovely illustration of the ocean and has the name of our little pueblo, Pescadero, on it. Greg wants me to take his photo with the drawing while getting his treatment. This way we can show her how much it means that she created it for him.  He considers it his talisman, serving him with power. He’s sweet like that.

The ferry ride today is a blur, but I get out of the car and go up to the passenger deck to get a photo as we travel to “the other side” as we call it. This is the first of 35 daily trips (Monday through Friday) for Greg’s cancer treatment. The first of seven chemo treatments, in addition to radiation, is in two days.

Treatment begins!

The technician holds Lilly’s drawing for me. I return to the waiting room and they guide Greg into the radiation machine.

 

 

 

 

 

 

To Dance is to be Happy

Los mariachis me hacen bailer

Bailer es ser feliz

La  música tiene un ritmo

Me hace tocar los pies

Bailer es ser feliz

~~~

The mariachis make me dance

To dance is to be happy

The music has a rhythm

It makes me tap my feet

To dance is to be happy

~~~

Don’t they look happy?

Part IX: Getting Ready to be Fried and Poisoned

Time Between Procedures

 

We head up to Greenbank Farm on Whidbey Island to let Isabela run and to enjoy our “free” time. Greg has appointments for getting his chest port and his gastronomy tube, but we make the most of moments we have beforehand. Being back on Whidbey Island is a lot like being home. You know that sweet feeling that you get from being home? We are taking this as a happy sign. Not enjoying the weather so much, but when there is a break from the rain and snow, we venture out.

 

Having Isabela with us is wonderful. She is devoted to Greg and he to her. Love is happening here. Probably the only thing bothering us now is how unsettled it feels to wait for treatment to start. It’s cold too. And we’ve been away from Whidbey for six and a half years.

It’s fun to see the fir and cedar trees again, but did I mention how cold it is? Brrrr. Greg is borrowing Mike’s jacket and I have some of Janine’s warm clothes too. The thrift store offered some warm things also, and we bought new boots and socks. Both of us had boots when we got here, but the soles came completely off the boots from lack of use. Apparently that is a common problem. Who knew? The sales guy at REI knew. He’s seen it before. We’re bundled up and Janine gave us an electric blanket for the trailer. We snuggle and try to enjoy ourselves. One morning we wake up to snow. It’s pretty, but it’s not what I had in mind.

 

We spend a fair amount of time inside Mike and Janine’s home. It’s so beautiful and comfortable. They keep bugging us to just move inside, but we are determined to give them (and us) some space. This is going to be a long haul.

Finally the day arrives when Greg has his chest port inserted into his chest. He’s in good spirits and he even gives me an uncharacteristic smile in his pre-surgery way.

 

He looks so good to me in these moments. Even with that stupid hair net. I’m so worried about my guy. I remind myself that visualizing a good outcome is paramount to success. So I see it. I see him healed even before the treatments start.

Too bad I can’t hold on to that image when I need it the most. The future holds a lot of heartache and despair. But right now we don’t know that. Our expectations are that because he is so healthy, he can do this without much trouble. We couldn’t be more wrong.

 

 

Part VIII: “You’re on the Red Team”

Providence Regional Cancer Partnership in Everett, Washington

 

At Greg’s first appointment we are given a red card, lettered in black, “You are on the Red Team.” We have a team! Yes we do. Included on the Red Team are the oncologists and all the people who will assist us including our scheduler, nurses (two of them), the ones who administer the radiation and chemo, as well as the physician assistant (PA). It is going to take a lot of teamwork to cure this cancer.

Dr. Saikaly is the chemo oncologist. He is a soft spoken man with a big smile and kind eyes.

He’s been at this awhile and he exudes confidence. The plan, as he describes it, is aggressive—35 radiation treatments and 7 chemo treatments. Radiation will be scheduled for Monday through Friday and Chemo on Monday after radiation. Dr. Saikaly calls it a double whammy, no holes barred.

Little do we realize how much of a whammy this will be, even though the oncologist describes in detail all the side effects (tons!) and we are overwhelmed. We are given a 3-inch notebook full of information with tabbed sections where we can add things as we go along. Everyone here understands that the complicated verbal information and directions will be lost to us as soon as we walk out the door. The comprehensive notebook contains everything we are being told and more. All the important Red Team names and telephone numbers are listed and we are encouraged to call if we have questions or if there is an emergency.

Greg will have blood tests every week. His first one shows a healthy man. All of the results read how you’d expect for a 20 year-old. Makes it hard to believe he has this life threatening cancer.

Next we meet with Dr. Little, the radiation oncologist. He is the younger of the two oncologists— early to mid 40s I’d guess.

His demeanor is opposite of Dr. Sailkaly’s. Dr. Little is very reserved, almost taciturn, and while he isn’t stand-offish, he isn’t outgoing either. He explains some of the same things that we learned earlier. Nobody is hiding the ugliness of the upcoming treatments. We are given another notebook, almost as huge as the first one, specific to the radiation treatments. We learn that Greg will be fitted for a mask. The mask is molded to his upper body and head, and will be screwed down to the table he will lie on, holding him still as he glides into the radiation machine.  A mask? What? Our hearts pound.

The following is from the Providence Regional Partnership Website:

The radiation is called TomoTherapy and is a new way to deliver radiation treatment for cancer. It delivers a very sophisticated form of intensity-modulated radiotherapy (IMRT), and combines treatment planning, CT image-guided patient positioning, and treatment delivery into one integrated system.

The radiation treatment is delivered similar to the way a CT obtains an image, by continually rotating around a patient. However, it’s not only capturing an image, but delivering a highly focused, intense beam of radiation to the cancer target area from multiple angles. TomoTherapy assists physicians in developing highly precise treatment plans with minimized side effects for patients. The Cancer Partnership’s new TomoTherapy machine is one of only 120 in the world.

This new technology is adaptive, and allows physicians to adjust and customize the size, shape, and intensity of the radiation beam to target the radiation to the size, shape, and location of the patient’s tumor. This benefits the patient by minimizing radiation exposure to healthy tissue. New images are also created every time the patient is treated to help guide treatment based on patient anatomy for that day, rather than for last week or last month.

~~~

Both oncologists recommend that Greg get a chest port for administering the chemo and other meds, plus the port can be accessed for the weekly blood work. Rather than get intravenous pokes for seven weeks, making him appear to be a drug user, the port will handle everything like a breeze. It’s a quick surgical procedure. Also, both doctors strongly suggest that Greg get a stomach tube for feeding once his radiation treatments make it difficult to impossible to accept nutrition orally. Gross. Just gross. This doesn’t sound good at all, and Greg is skeptical.

Gastronomy Tube (G-Tube)

This is how they place it.

 

But it is important to keep up with nutrition to help fight the effects of the radiation and the chemo. Greg only weighs 174 pounds. At 5’ 11” that isn’t much weight. He’ll need all of it to stay strong. There are so many tests and procedures for Greg. He is taking it in stride–so calm. I’m usually the calm one, and now the roles have reversed.

The first thing Greg will have is the positron emission tomography, also called PET, and computed tomography (CT) which are diagnostic imaging methods used to find and assess tumors inside the body, and evaluate how a patient is responding to treatment.

From the website:

“The GE Discovery PET/CT scanner blends both into one—a single, full-body scan generates two sets of images, which are fused to show a patient’s anatomy and any hot spots of suspected cancer. A PET scan can be used to detect cancerous tissues and cells in the body that may not always be found through computed tomography (CT) or magnetic resonance imaging (MRI).”

A PET/CT scanner can produce 3-D multidimensional, color images of the inside workings of the human body. It shows not only what an organ looks like, but how it is functioning.They use a special dye (tracer) that shows cancerous activity if any, and we will know if cancer has gone somewhere besides his tonsil (metastasized). Greg is encouraged by this, because he says, right then and there, that he will forego treatment if they find it elsewhere. “Just like my father did when they found more cancer in his body,” he tells us.

Here’s what it looks like:

 

At this point, I’m visualizing a clean PET scan with all my heart, using whatever positive energy I can muster and I’m beseeching the Universe to make it so. It’s not so much that I don’t believe in God, I accept there is a higher power, I try to live like a good person, but I do not pray to God. Neither of us do. Many of our dear friends will pray for Greg (and me) throughout this journey, and this gives me hope. I admit it seems contradictory, but I do believe in the power of prayer, and I am grateful that others will be praying.

Next we go on a tour. Chemo is administered on the 3rd floor and there are many beige recliners scattered into pod-like areas. There are a few private and semi-private rooms as well, all outfitted with recliners. In one small area is a community refrigerator and coffee and some granola bars for the patients to enjoy. If you bring food or drinks that need to be chilled, you can use the refrigerator.

The large room is flanked on one wall with windows that have expansive views of snow covered mountains beyond the parking lot below. Every recliner is occupied. Lots of people getting treatment for cancer. More than you might imagine. Lots of people are knitting, crocheting, reading, talking, or just staring into space as the poison goes drip, drip, drip into their veins. We avoid their eyes because it makes us feel we’d be invading their privacy. There are nurses everywhere tending to the needs of the patients. They move with grace and purpose. They look you in the eyes, not with pity, but with empathy and understanding. Handshakes and smiles abound.

Our last appointments are with the financial adviser and the insurance guru. Providence is a non-profit and they have resources to offer patients with financial needs. We are offered help too, though we don’t accept, knowing that others need it more. This long day has been exhausting, but we are touched by the professionalism, respect, and kindness demonstrated by everyone we meet.

The scheduler, Abby, will call us about dates and times for the PET scan, chest x-ray, as well as the chest port and stomach tube procedures. We’re moving pretty fast, but the first radiation and chemo won’t be till Dec. 5th. We’re going to have some down time on our hands.

We’re suspending almost everything our lives are about in order to deal with Greg’s cancer. We’ve left our beautiful home by the beach and driven from the bottom of Baja to almost the tip of Washington state. In the process we have become vulnerable in ways we never dreamed possible. In the midst of fear and anxiety, small things, like a smile or a nice gesture, have the power to cause tears to well, not just in my eyes. In Greg’s as well.

We are more grateful than ever to our friends and family and our Red Team. We feel it is important to give back to everyone, including to those at Providence Regional Cancer Partnership. As the weeks go by we bring freshly baked cinnamon rolls to the women at the front desk and Starbucks cards to others we’ve encountered. Everyone has gone above and beyond to answer our questions, make us feel comfortable, and treat us with respect. “Thank you,” escapes from our lips constantly.

More than one million people in the United States get cancer each year. Whether you have cancer or are close to someone who does, understanding the facts can help you cope. We are getting the facts.

I cannot begin to speak for anyone who has cancer. Not even my husband. I can only share from the partner side of things, but I do have first-hand knowledge of the dedication demonstrated by the health care workers where Greg is treated. They are phenomenal people. Angels, every one of them.

 

 

 

Two Weeks after the Storm & The Bravo Market in La Paz

Once our clean up after Tropical Storm Lidia is complete, it’s business as usual. We’re working with Salvador at Baja Paperworks in La Paz to become citizens. After we meet with him we stop at the Bravo Market in La Paz to get Greg some bacon. I snap a few photos. Some better than others, but you get the idea.

Bones for Isabela too!

 

Pollo

 

We love the market with its vibrant colors and the rich smell of raw and cooked food. There are lots of choices when it comes to eating and there a lots of juice bars too. If you’ve never been to Bravo Market (on Bravo St.) you are missing some fun.

 

I wonder how you cook a goat head?

 

Ribs anyone?

 

Pretty as a Picture

 

 

 

On the way home from La Paz I get a photo looking through the truck windshield. Never mind the bugs on the windshield. Just enjoy the clouds and blue sky.

 

Which brings me to 14 September 2017

There has been a tremendous amount of turtle nesting activity on “our” beach in El Gavilan (south of Pedrito). It’s unfortunate that so many people choose to ignore the NO VEHICLES ON THE BEACH law. As if it isn’t hard enough for the little turtles to survive to adulthood. We mark the nests when we come across them on our morning walks. Thanks to the storm we have plenty of sticks with which to mark them!

 

Unfortunately, Lidia brought a lot of debris to the beach. Some of it is organic—tree branches, for example, and cactus. But those arroyos are full of garbage and it washed down too. Plastic is everywhere. A fair amount will be in the Pacific Ocean from this as well. So sad.

I remember how hard we worked to clean our beach after Hurricane Odile. Here we go again.

 

The ocean is still quite dirty. The green color in the water indicates this. These photos are from my walk this afternoon.

 

 

Look closely and see the green water in the photo before it turns blue. Green means it’s “dirty” water.

 

We are busy living their lives again, and tonight we are going to the new brewery in Todos Santos for their yummy fish and chips. Look for my blog post on the brewery soon!

Making Art from Scrap Metal

This is the best recycling I’ve seen. Martin Angel, the proprietor of Artejal Galeria on Carretera 19, KM 64 in Pescadero, BCS, uses his imagination and skill to create fantastic creatures. His bread and butter is making security gates and doors, but his creative side is always looking for something artistic to accomplish. What an amazing talent.

Look closely and see if you can identify the parts and pieces of his sculptures. These mujeres (women) are the traditional  Dia de los Muertos (Day of the Dead) figures that are so popular here in Mexico.

 

 

 

 

 

 

 

Check out the dragon. He’s so scary looking, but I was mesmerized as I took his photo. He was probably a star in Avatar.

 

 

What do we have here?

You probably need to be a car mechanic to be able to identify a lot of this stuff.

It looks like he’s ready to take off any minute.

 

Martin (pronounced Mar-teen) has done work for friends of ours, Gwen and George. They have his cactus skeletons as part of their gate decor. Very cool.

Here’s a tuna cactus that he made for someone. He is going to finish it with some sealer, but leave it rusted. There are some buzzards perched there too.

 

This is no pink flamingo.

 

Who knew that rebar would make such lovely hair?

 

 

This little mermaid is beautiful. I’m not a mermaid fan necessarily, but I wouldn’t mind bringing her home.

 

These buzzards are so real looking. We have a lot of them in the desert.

 

Baja shores are filled with pelicans too.

 

This is Martin’s nod to another creature that is found here in Baja. (A big reason we moved here).

 

 

Look at those 6-pack abs!!!

 

 

Doesn’t this vaquero have a beautiful face?

 

If you come to El Pescadero, be sure to stop in and see Martin’s creations. If you need security gates or doors or window bars, he can help you with those too. It’s almost hard to believe these creations happen in such a rustic environment by such an unassuming man.

Martin Angel

612-133-0023

artejal2001@yahoo.com.mx

 

 

 

 

 

 

 

 

 

 

 

 

Part VII: Our Parallel Universe

October 30, 2016.

The miles tick by. California, Oregon, and finally Washington. It’s all a blur. But it is crystal clear that we are being loved and supported by our family and friends. So many offers of help and places to stay while we find out what’s going to happen. I dub all “our people” members of Team Farrar. Our hearts are full of gratitude and humility.

Our final destination is close. I’m driving past the intersection that would take us to Kamiak High School where I used to teach English. Seems so long ago. We are in Mukilteo, WA headed for the ferry that will get us to Mike and Janine’s on Whidbey Island where their friend, Tyler, has generously loaned us his trailer. The trailer is all set up and ready for us on M & J’s property. Tyler says we can have it as long as we need it. Mike and Janine say we can stay as long as necessary. How kind. How loving.

It is at this point in the drive when Dr. Adams calls on our cell. I turn right onto 92nd St and park so Greg can talk to him without the distraction of road noise. I will never forget these moments. The call. What we learn.

The tumor is 4cm. The biopsy shows what the doctor thought–stage IV squamous cell carcinoma. All the surgeons who have looked at the reports concur that the tumor is inoperable.  Greg will need to meet with a radiation oncologist and a chemo oncologist right away.

So there it is. Definitive.

We are both shaking. We just sit there in our car in an unfamiliar neighborhood off 92nd St. What is there to say to one another?

~~~

Starting now, the day before Halloween 2016, we begin our time in what we’ve come to refer to as our parallel universe.

The love we receive from our team will sustain us for months of doctor visits, hospital stays, radiation, chemo, times of great despair and pain. In the next few months we will come to feel that the Providence Cancer Partnership is our home.  Our new mantra is, “We’ve got this!” We think we’re ready.

As we move forward with treatment, there will sometimes be more than we can handle; many surprises, tests of our resolve, but for now we repeat our watchword many times a day. Let us begin the next chapter in our journey holding on to each other in our parallel universe.

 

Our trailer home at Mike and Janine’s.

 

WE’VE GOT THIS!!!

 

 

 

Part VI: Driving the Baja Again

 

With mixed emotions, we’re off, driving north to our unknown life because cancer has come to call. We’ve driven the Baja many times; we know all the check points, gas stations, which restaurants to avoid, which hotels accept dogs, and the roads are familiar (and dangerous in many places). Our senses are heightened and we are consumed with our own thoughts. What the hell? Cancer? Really? There is this tiny, itsy bitsy idea in my head: maybe it’s not cancer. Maybe it’s okay. I guess it’s my natural state to be a positive thinker, but some would label my thinking nothing more than denial. I wonder what’s going on in Greg’s head?

We’ve haven’t gone very far when Greg starts talking about updating our will. His idea of making plans clearly includes the real possibility that cancer will get its way. Take his life. “No. No. No. I don’t want to talk about this right now.” But I have to acquiesce, because he needs me to focus on what he wants. He is Mr. Practical. And I think somewhere in his normal way of doing things–his modus operandi–he finds relief. That might sound odd, but making some practical plans, doing something over which you have some control, just allows your fear to take a step back. Okay, let’s focus on what we can do.

We also discuss when and how we will tell our three sons, and other family members. So far we have not shared anything with them. Very few people know what we’re dealing with and that is how Greg wants it right now. In order to leave our home for an unspecified time, we request assistance from our neighbors, who generously offer to do whatever we need. Greg takes care of all those plans too. It gives him something to do besides think.

Antonio, our Mexican gardener, will water our plants weekly and do a general clean up once a month. Randy, our dear friend, will maintain our solar batteries, and our close neighbor, Aldo, is in charge of paying Antonio (who works for Aldo too) and keeping tabs on our water needs, ordering a truck of water when the cistern is low. Aldo is also keeping an eye out so we don’t have troubles of the thieving kind. Our alarm system is functioning well, and we are as protected as possible. Greg has even made sure that we have the correct increments of pesos to pay Antonio organized for Aldo so he doesn’t have to go to the bank to change big bills into small ones. This is a kindness on Greg’s part, as there is nothing “normal” about a banking experience here in this part of Mexico. Trust me. It sucks.

Driving the Baja can be a harrowing experience because the roads are so narrow and there are so many huge trucks carrying the goods that keep all of us who live here comfortable, fed, and happy.

 

 

There are many mountains to cross and you go from one side of the peninsula to the other and back again. (See red line on the map above). There are no coffee shops, no signs pointing out your next Starbucks. We need to be alert. Besides, coffee is mandatory for a road trip. So we have a small propane stove and all the fixings for making our own coffee.

Here’s a nice place to stop for coffee.

Day one is a hard day of driving. We take turns, though Greg does the majority of the driving. At our stop in Santa Rosalia for gas we can’t find a hotel with a vacancy that accepts dogs, so we continue on an hour or so where we find a small hotel for the night. We sleep restlessly and are up at 5:00AM. Our goal is to get through the rest of the Baja drive on day two. It’s doable.

 

 

 

Our backs are sore, we are tired and hungry and need a break, but we continue onward to the Tecate/US border crossing after a stop in Ensenada. There’s a Starbucks there too. Coffee is our fuel. California here we come.

We plan to stop in San Diego where our youngest son and his wife live. They  care for my 100 year old mom, making it possible for her to live in her own home. (They are angels.) We called them last night giving them our “news” and it will be good to get some hugs and a quick visit with them, plus some sleep before we continue to Washington and whatever the fates have in store for us.

Oh and by the way:

 

 

 

 

Part V: Hanging by a Thread

 

Feeling no control of my own body, my own thoughts, I continue to pace the floor, going room to room without a clear purpose. I keep finding myself wondering, “What am I doing here?”

 

I find solace in petting my dog, cuddling with her. I keep telling Isabela how much I love her. My body is listless and I’m certain the blood has drained from it. I cannot focus on any one thing. So I sit on the steps outside with my dog and I pet her and tell her over and over again, “Mommy loves you. Daddy’s going to be fine.”

After talking to Greg this morning before he left the island for his appointment at The Everett Clinic, I realize I was confused about the events of yesterday. Greg did not see Dr. Jeffrey Adams. He saw an ARNP, Amy Williams. She is the one who called him yesterday while he was in the ferry line and told him Dr. Adams would see him and do the biopsy today. She was the one who ordered the blood work up, the chest x-ray and the CT scan. She is the one who pushed other patients aside to make room for him instantly from the walk-in clinic. In these moments of panic, dread, and fear, I imagine myself hugging her, thanking her for taking care of my guy, and being so kind, making things happen for him so quickly.

Waiting again. What will we learn today? Can I expect any good news? Are they sure they just can’t operate to remove this tumor? What if there is cancer somewhere else in his body? What are we going to do? Now I’m angry with myself for not going with him to Washington. He shouldn’t have to do this alone. What was I thinking? It would be easier for me to be there to know what is going on anyway. Why did I stay home? I’m choking on my fear. My stomach is empty, but I feel like I’m going to throw up. It must be the adrenaline coursing through my body. I’ve always hated adrenaline. That’s why I don’t do roller coasters, and yet that’s what I’m on right now. Again, I have to remind myself to breathe. In and out. Calm down.

I busy myself with chores. Nothing like the mindless jobs of cleaning house and doing laundry. And then the phone rings.

There is no good news. Dr. Adams takes a sample for a biopsy, but says he is sure the tumor is cancerous (he’s seen a lot of these) and it is too big and close to the bone to remove it with surgery. Even when he does surgery to remove a tumor he recommends chemo and radiation afterward. The results of the biopsy will take at least a week, and he strongly recommends that Greg go home, pack up his clothes, his wife and dog, and drive up to Washington right away. There is no time to spare. My husband has cancer.

I change Greg’s return flight and he comes home three days sooner than planned. He left on Wednesday the 19th of October, got a work up on Thursday, a biopsy on Friday, and he’s back in my arms on Saturday. We have a lot to do to be ready for our 1900 mile drive from the tip of Baja to the Seattle area in Washington.

The night before we leave for Washington

I don’t know how we did it, but we manage to drive away from our beautiful home on Tuesday October 24, 2016 knowing only that our future will include treatment for cancer. We have barely a small inkling of the hell we are going to experience.

 

 

 

 

Part IV: When Cancer Comes to Call–An Action Plan

On the 7th of October we celebrated my 70th birthday in style with ten of our dearest friends in Baja. It was a magical evening of fun, food, and friends.

 

Little did we know while blowing out that candle, that we would be plummeting into the darkest time of our lives eight days later.

On the 15th of October we learned Greg had a 4cm. tumor on his tonsil and needed medical intervention of some kind. True to his personality, he wouldn’t leave for the states right away. “I have too many things to do first.” What a stubborn man. I managed to get him on a plane to Seattle four days later on Wednesday October 19, 2016. At least this way we had a few days to make a plan of action for this important trip. What is the first thing you do in a case like this? Google “tumor on the tonsil,” of course. Pretty scary business; the information did nothing to assuage our fears.

Here is a guy who is so healthy he doesn’t take any medication. Not even vitamins. He’s never had troubles with any of the usual medical issues, like excess weight, high cholesterol or high blood pressure. His health couldn’t be better. Except for this tumor on his tonsil. This made going up to Washington to see a doctor a bit tricky, because Greg didn’t have a doctor up there.

I had been a patient with The Everett Clinic, and satisfied with their organization and care. I told him he should go to the walk-in clinic in Everett and explain to whomever he saw what was going on. He was worried that they would put him off and he’d have to be there for a long time trying to get help. But based on the fact that I had looked in and seen the tumor for myself, I told him not to worry. I assured him they would get right to it once he opened his mouth and said, “Ahhhh.” He continued to voice his concerns, but I was confident enough for both of us. “Just go,” I told him.

I made his plane reservations and arrangements for him to rent a car. Peggy, our dear friend in Seattle, opened her home to him for as long as he would need it. Our pup, Isabela, and I took him to the airport. I gave him reassurance, huge hugs, and many kisses. Now my job would be to practice the art of patience and wait to hear what he would learn. The anxiety I felt gave way to tears. I cried for the first part of my trip driving home. My churning stomach and the heavy feeling of dread–thinking of the worst case scenarios, filled me the rest of the way. Once home, I paced from room to room. I had to remind myself to breathe.

Greg followed our care plan for the next day. Peggy tried to get him to eat breakfast and sent him off with coffee, a lunch, hugs, and good wishes. His drive from Seattle on the early morning of the 20th got him to the Everett Clinic, The Gunderson Building, when the walk-in clinic opened. Checking-in was a breeze. The first doctor to examine him took action immediately. She went to the ear, nose, and throat specialist’s office across the hall and convinced the receptionist to have Dr. Adams see him straightaway. This heightened Greg’s fears, but it also gave him a calming sense of confidence. By noon he had been examined thoroughly, given a chest x-ray, a CT scan, and was waiting in a ferry line to get to Whidbey Island in order to spend time with our friends, Mike and Janine and their daughter Jordan. While he waited to board the ferry, Dr. Adams’s office called him with a time for a biopsy scheduled for the next day. The speed with which they worked demonstrated an urgency I wished to deny.

It was 2:00PM my time (an hour later than his time) when he finally called me with all this news. I was coming out of my skin with worry, and I was angry that he’d waited so long to call me. All day I’d been overwhelmed with panic–a mental numbness–not having an inkling of what was happening to my husband of 38 years.

Hearing his satisfaction with the treatment he was receiving calmed me a little, but he said it didn’t look good. I think he told me the tumor was too big for a straightforward surgery. It would not be an option. I kept asking questions, babbling, and I’m sure I was doing a fair amount of stammering.

I remember thinking, he seems almost happy talking about how he’s going to spend the night with Mike and Janine on the island where we had lived for 32 years. But when he says, “They are doing a biopsy in the morning,” I find I can’t breathe.

I don’t remember ending the phone call. I have no recollection of how I spent the rest of the day and night. At the time all I could think was, “Cancer. It’s probably cancer.”